Covid-19 and your information
This notice describes how Marie Curie may use your information to protect you and others during the Covid-19 outbreak. It supplements our main Privacy Notice which is available here.
The health and social care system is facing significant pressures due to the Covid-19 outbreak. Health and care information is essential to deliver care to individuals, to support health and social care services and to protect public health. Information will also be vital in researching, monitoring, tracking and managing the outbreak. In the current emergency it has become even more important to share health and care information across relevant organisations.
Relevant Legislation
Existing law which allows confidential patient information to be used and shared appropriately and lawfully in a public health emergency is being used during this outbreak.
Using this law the Secretary of State has required NHS Digital; NHS England and Improvement; Arm’s Length Bodies (such as Public Health England); local authorities; health organisations and GPs to share confidential patient information to respond to the Covid-19 outbreak.
Any information used or shared during the Covid-19 outbreak specifically for the purposes of the public health emergency will be limited to the period of the outbreak and will not be used after the emergency has been declared over.
Further information is available on gov.uk here and some FAQs on this law are available here.
Your Data Subject Rights
During this period of emergency, opt-outs will not generally apply to the data used to support the Covid-19 outbreak, due to the public interest in sharing information. This includes National Data Opt-outs. However, in relation to the Summary Care Record, existing choices will be respected.
Where data is used and shared under these laws your right to have personal data erased will not apply.
It may take Marie Curie longer to respond to Subject Access requests, Access to Health Records requests and new opt-out requests whilst we focus our efforts on responding to the outbreak. We thank you for your understanding and patience during this difficult time.
Keeping Our Services Available to You
During this period of emergency we may offer you a consultation via telephone or videoconferencing. By accepting the invitation and entering the consultation you are consenting to this. Your personal/confidential patient information will be safeguarded in the same way it would with any other consultation.
In order to look after your health and care needs we may share your confidential patient information including health and care records with clinical and non-clinical staff in other health and care providers, for example neighbouring GP practices, hospitals and NHS 111. We may also use the details we have to send public health messages to you, either by phone, text or email.
In such circumstances where you tell us you’re experiencing Covid-19 symptoms we may need to collect specific health data about you. Where we need to do so, we will not collect more information than we need and we will ensure that any information collected is treated with the appropriate safeguards.
Sharing Data in the Interests of Public Health
We are required to share personal/confidential patient information with health and care organisations and other bodies engaged in disease surveillance for the purposes of protecting public health, providing healthcare services to the public and monitoring and managing the outbreak. Further information about how health and care data is being used and shared by other NHS and social care organisations in a variety of ways to support the Covid-19 response is here.
Information Storage and Security
NHS England and Improvement and NHSX have developed a single, secure store to gather data from across the health and care system to inform the Covid-19 response. This includes data already collected by NHS England, NHS Improvement, Public Health England and NHS Digital. New data will include 999 call data, data about hospital occupancy and A&E capacity data as well as data provided by patients themselves. All the data held in the platform is subject to strict controls that meet the requirements of data protection legislation. Further information about how Marie Curie protects information is available on our security page here.
How to Contact Us
If you have any questions about this notice please get in touch. Our contact details are here.
We may amend this privacy notice at any time during the Covid-19 response so please review it frequently. The date at the top of this page will be amended each time this notice is updated.