Learning disabilities and autism at the end of life
This network aims to reduce the inequalities in care for people with a learning disability and autistic people, in line with the NHS's LeDeR programme . Register for this network .
Who should join?
The network is open to healthcare, social care and charity practitioners in Birmingham and Solihull who regularly care for, support, or meet people with learning disabilities and/or autism.
All levels of role, professions, and settings are welcome. While this is a closed network for participants based in Birmingham and Solihull, we will be launching an open national network, so please reach out for updates.
Objectives
- Improve the lived experiences of those with a learning disability and/or autism and the experiences of those important to them.
- Reduce the health inequalities experienced by those with learning disabilities and autism.
- Increase awareness of ECHO methodology as a way of sharing knowledge and improving care at the end of life.
- Increase understanding of local learning from the Birmingham and Solihull LeDeR report and create a community of practice to lead collaborations and initiatives based on the local need.
Curriculum
The curriculum setting session has taken place and the schedule and topics agreed for the network are below. Please note that some session topics may move around the confirmed dates to accommodate speaker availability.
| Date | Title |
| 7 March 2024 14.00 – 15.30 |
Learning disabilities and autism: An overview |
| 4 April 2024 14.00 – 15.30 |
Person-centred care:How can we involve individuals and those important to them in their care |
| 2 May 2024 14.00 – 15.30 |
Advance care planning: What conversations are needed, and how can we make space for them? |
| 6 June 2024 14.00 – 15.30 |
Symptom management at the end of life: Recognising dying, identifying symptoms and both pharmacological and non-pharmacological responses |
| 4 July 2024 14.00 – 15.30 |
Bereavement: Exploring bereavement and grief for individuals with learning disabilities and autism after the death of someone important to them. |
| 1 August 2024 14.00 – 15.30 |
Working together: How can we work more collaboratively across Birmingham and Solihull? |
| 5 September 2024 14.00 – 15.30 |
Sharing experiences: How can health and social care professionals be more inclusive in the services they provide |
For more information please contact echo@mariecurie.org.uk.
